Test done in December and here I am, in the Specialists
office again to get my official diagnoses, and no, its not a disorder called “Kerry
Katona”, but a de-generative corneal disorder called keratoconus
which in short means that the normally “ping pong ball” shaped eye re-shapes
the front of the eyes into a “rugby ball shape”, via corneal thinning.
This results in significant visual impairment like
distortion, multiple images, streaking, ghosting and sensitivity to light and
many other issues. In some cases this can lead to drastic situations as full
blindness, but apparently I’m still far away from that.
Many different sources quote different statistics on how
many people have the disorder, but it comes to about 30k people in the UK only,
that on approx 63 million people living in the uk put things in a pretty fun perspective.
The disease predominantly occurs in the “Teen” or “Twenty”
years, and I got diagnosed a week before my 36th, so sort of out of
the target area I guess, on top of that It seems that my eyes have thrown me
another curve ball, as my “conus” is nipple shaped, a fairly rare form of KC
according to my specialist. Al off this
is ofcourse no surprise to me, as my parents have always told I’m a bit special
anyway.. although they might have meant something else with that (-:
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